Trish took Aidan to see Dr. Baker regarding a bout of conjunctivitis.
As they were about to leave Dr. Baker checked his temperature. Over 39
degrees Celcius. Guess who didn't come home tonight ? He spent the night
Aidan's neutrophils (white cell) and platelets (clotting cells) countsare
still down. The outcome is he's stuck in hospital and probably heading
for another blood transfusion. The first post-operative MRI is scheduled
for the 15th August. We just love MRIs, the messengers of good news.
Aidan needed a platelet transfusion today (his first ever) before his
stem cell harvest tomorrow. Just after it started, a few scratches to an
itchy elbow turned into huge hives all over his body. He was trying to
scratch his whole body at once. The platelets were stopped and some IV
drugs given which helped a bit. Then they started the transfusion again
and after half an hour, so did the reaction. The second time was nearly
as bad as the first time but there was less we could do. We painted his
body pink with calamine lotion and topped him up with the last bit of the
drugs that he hadn't had before. Later that evening, when the medication
had worn off, it all started again. The visit home, for a few hours, just
didn't happen. Aidan got KFC for dinner as a substitute and Mum got the
walk to KFC.
Aidan's platelet count came up a little bit on it's own and everybody
breathed a sigh of relief. After all the reactions I really didn't want
another transfusion if possible.The doctors got brave and removed the line
from his leg. With the low platelet count they had been scared that it
wouldn't stop bleeding. We got to go home!!! Liam and Evan were very excited
and Caitlin asked, "Are you staying Mum?"
Awoke to the sounds of Aidan and Caitlin "chatting" from their bedroom,
with no shortage of decibels. After many days of absentia, it would appear
the little people were catching up on old times.
Aidan went back to school after about two and a half weeks off. He
walked in to the class and declared, "They finally let me out!"
The last round of chemo has taken its toll on Aidan's scalp. He emerged
from his bedroom laughing and holding clumps of hair. Cheap entertainment
was provided in the form of Trish and Aidan plucking more of Aidan's hair.
We do have a TV, but hair pulling was in vogue.
Aidan, Caitlin and I kicked it back at an early session of a Disney
Emperor's New Groove. A talking llama isn't something you see everyday.
The clouds parted in the afternoon and cast a ray of sunshine over
a local playground. Aidan and Caitlin ran themselves silly on the roundabout.
For a brief spell, we had a normal little boy.
Grandad Michael and Aunty Jamie arrived today. It's been four and a
half years since we last caught up in Fort Lauderdale, Florida, USA. Aidan
was not quite two and certainly doesn't remember his encounter with Mickey
Mouse at Disney World in Orlando.
We're getting the band back together ...
A collection of Telciks. Please excuse the blur and devil eyes.
(L-R): Nicola, Aunty Jamie, Evan, Aidan, Trish, Caitlin, Grandad
Michael, Liam, Tim. Click to enlarge.
The winter rains have been flowing freely over Lesmurdie Falls. We
escorted Grandad Michael and Aunty Jamie to see the aqua.
Lesmurdie Falls, making a debut appearance. Click to enlarge.
Aidan, Caitlin and Aunty Jamie at Lesmurdie Falls. Click to enlarge.
One good camel deserves another. How could we resist another visit
to the friendly camels at the Calamunda
Camel Farm. We could not, and did not, Sam I am.
A friendly hairy camel. Click to enlarge.
A final jaunt around Perth commenced with a trip to Scitech
and followed with a stroll through Kings
Park. The sun was up, the rain was away. Quite wonderful.
Aidan and his converyor belts.
Click to enlarge.
Aunty Jamie and Aidan overlooking Perth from Kings Park. Click to
The week ran its course with barely a backwards glance. We waved farewell
to Grandad Michael and Aunty Jamie for their long haul back across the
Trish collected favourable MRI results. The high-dose chemo kicks off
Wednesday 29 August. Let the games begin.
The next onslaught of chemo has been postponed until Friday 31 August.
Better yet, the first drug will be taken orally at home. The following
week Aidan will be admitted and hooked up for intravenous infusions. The
stem cell rescue protocol is a little better than we had first anticipated.
The quarantine restrictions have been relaxed a little which means we can
spend some time with him during the day. There was even talk of grouping
several kids undergoing the same procedure into one room. That would certainly
help pass the time.
A bit of fun in the sun with frisbees and much running after them.
Click to enlarge.
Aidan's treatment protocol commenced today with an oral dose of Temozolomide
at home. He will hopefully remain at home until Tuesday 4th August when
he will start with intravenous infusions of Thiotepa and Carboplatin. So
far, so good.
Last updated: 17-Sep-2001